On the 13th of May 2022 our baby girl was diagnosed with Acute Myeloid Leukemia (AML).
Only around 100 children a year in the UK are diagnosed with AML, making it the more rare form of Leukemia in children. Two weeks into her treatment we found out that Florence was in the ‘high risk category’ and since then further genetic testing has confirmed a rare gene rearrangement that affects less than 10% of children with AML. The prognosis for these specific gene mutations is very poor- meaning we have to work hard and fast to get the right treatment.
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Fundraising through the Grace Kelly Childhood Cancer Trust
Florence’s family have made the decision to continue their fundraising for Florence’s medical treatment through the suppport of the Grace Kelly Childhood Cancer Trust. By fundraising through the charity, it means that tax payers’ donations are eligible for gift aid and some organisations may be able to offer match funding.
The original crowdfunding page on Justgiving set up by Florence’s family already has incredibly raised almost £250,000. It is amazing what so many generous people can do. These funds will help to cover some of the costs that Florence’s family will face in seeking treatment abroad and also to cover contingency costs should she need more complicated treatments or prolonged hospital stays as well. If for any reason the treatment is not needed by Florence, the funds will be used to fund research into childhood cancers. #bemorefab
Grace Kelly Childhood Cancer Trust, Registered Charity Number 1167783
